What can clinicians learn from my experiences?
As a researcher I often attend events aimed at clinicians, but I'm becoming used to feeling ignored when I share insights from my brain tumour story.
This week, I had the opportunity to attend the Benign and Metastatic Tumours course at the UCL Queen Square Institute of Neurology. Renowned for its excellence, this centre is globally recognised as a leader in neuroscience and neuro-oncology. The course was a part of the Multidisciplinary Neuro-oncology Teaching Course, featuring a series of lecture-style sessions complemented by Q&A segments. Its objective was to offer a comprehensive overview of the patient journey, from diagnosis through treatment and beyond, aiming for a holistic understanding.
As a well-informed, long-term survivor of a high-grade glioma, I was eager to both gain new insights and share my own experiences. The prospect of enriching my knowledge and contributing to the discussion was exciting. However, my enthusiasm was met with unexpected challenges as the course progressed.
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